It has been quite the ride for me over the last seven months. At the moment, I am in a state of waiting. This is a state of impatience at nauseam that is both mind-boggling and heart wrenching. Over the last few days I have had some tests done at the cardiologist. I am praying and pleading for the outcome I want.
Today I am hoping to hear back from my doctor with those test results. It is a fine, tightrope of a line that I find myself on. One result will mean another open heart surgery, and probably soon. The other will send me back to the drawing board where I have been for the last 10 months. I am more fearful of the latter. Isn’t that something… Continue reading “Wonder Woman & The Waiting Game”
“This is my command—be strong and courageous! Do not be afraid or discouraged. For the lord your God is with you wherever you go.”
– Joshua 1:9
It’s been a while since I have had much to say. This blog was created as a place so I could share my story with other congenital heart patients. Being one of the oldest living patients with my condition, I tend to be some what of a rarity. Sometimes it’s really cool. Other times it can be quite intimidating. 2016 has actual knocked me on my strong little bum more than once. The beauty is, this little lady never stays down very long.
I do have to say the last two months however, have opened my eyes to an entirely new world. Our world, this big fantastic place full of so much wonder, seems to be in so much turmoil. It’s actually very heartbreaking. When you realize how short and precious life really is, it should be about finding your joy. What makes you laugh out loud, love wildly and want to dance in the rain with you hands in the air? We are all human. We all bleed red and we all return to ash when we go. So why do we spend centuries fighting, hating and arguing? I think in part it has to do with fear. We are all afraid of something. Of dying, or not finding our love, our happiness or of being heard. Continue reading “What If…”
Verse of the Day:
Consider it pure joy, my brothers, whenever you face trials of many kinds because you know that the testing of your faith develops perseverance. Perseverance must first finish its work so that you may be mature and complete, not lacking anything. – James 1:2-4
Sometimes life can kick you while you are down and then stomp on you just a little more. The last three years of my life have felt much like that at times, and this year hasn’t been a real walk in the park either. But, things are looking way up. After two heart surgeries, a pacemaker replacement, a staph infection,
kicking crack Oxycontin – and then walking around with a malfunctioning recalled pacemaker, I kind of went inside my head for a little bit. I mean all that happened May 2009 trough November 2011. Can you believe that?! It was enough to make any sane person a little crazy. Thanks be to God that I have Him and Jesus on my side or who knows where I would be! I also have to give props to my amazing husband who through very thick and very thin has been my rock of Gibraltar.
Continue reading “Perseverance and Joy”
Verse of the Day
Yet those who wait for the Lord
Will gain new strength;
They will mount up with wings like eagles,
They will run and not get tired,
They will walk and not become weary.
My story begins at birth. Due to the fact that I was born with my heart defect in 1978 there wasn’t a whole lot of options back then other than wait and see what happens. I had blue lips, fingers, and toes and I was underweight all my life. I was sick, but I felt ok. Normal for me, though, I couldn’t play as much as my friends because I would get tired easily and that frustrated me but for the most part I had a great childhood. Well, minus all the heart caths and checkups that is. I started to get really sick around 10 and 11 years old. My energy level was decreasing and my heart size was increasing. So in 1991 the doctors told my parents that I need to have heart surgery to live. It was that simple. The Fontan procedure wasn’t being done in Houston at the time and the best place to have it done was The Mayo Clinic in Rochester, MN. So that’s where we went. I went up in 1991 for a review, checkup, and meet and greet with the doctors. The next summer on June 26, 1992 I had my very first open heart surgery. Continue reading “Open Heart Surgery – The Fontan Procedure”